8 Comments
Mar 19Liked by Lilian Sjøberg

Her story is important. It needs to be honored. If not by others, then at least by herself. So many people are so busy with their own other concerns. Some come around at different times. Some never come back around. But her story is valuable. Thanks for sharing it.🙏🤗

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Listening now with gratitude for the voices that you are sharing . Thank you for creating this video .

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Fabulous story - and so telling, the lack of interest in recovery stories, meaning ways to recover!

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I feel that these experiences , full on crisis , and actual recovery from such a crisis , are helpful not just for people with physical problems , but also for the whole cultural story we are going through right now -- we are moving through a major glitch in the whole natural system , and knowing that there is a path through , and how to get on that path -- is what you gentlewomen are doing . I cared for a Parkinsons patient after going through an enourmous family crisis , and then , that work and the subsequent work , again with a Parkinsons patient was absolutely traumatizing to my psyche . I have focused on my body strength , health , and rest , but had to actively heal from the trauma . That is why I continue to study for clues . This is what I came to the other day : I can't have a relationship with a disease , a syndrome , or a psychosis . These are all like virus's , or programs , or what is called in fancy words , " Pathology " a pattern of action that does not support the structure that it is co existing with . Like Rust on a Bicicle chain , it must be removed . If you have a relationship with it , eventually your legs will not over come the drag of rusty ness . When disease hides inside of behavior , it can trick the self , or the people around the self , to relate to it . But you can't . Its not ever going to react back . It does not care at all . I used to call Parkinsons' the ornery horse that Ellie was riding , and knew that that horse would throw her , and kick me for good measure . Sure , I learned how to placate Parkinson , and learned a lot from the experience about brain chemistry , and movement , and emotion , but ... I have learned to recognize the difference between the Horse Named Spirit , that we all ride , and that bad confused poorly trained horse named Parkinson .

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